Dear University, Much has been researched and written regarding the disadvantage and inequity experienced by people with disability in the university system. There are entire academic disciplines, departments and databases devoted to the topic. To explain how it has effected me as a person who is well within the realm of legal blindness is difficult. It is difficult because somehow I am the one who carries the shame and burden of not measuring up to an impossible standard, set by a structure and history of exclusion and invalidation of my needs, wants and rights. I try not to think about it too deeply, but I know I would be even less likely to succeed without opportunities within the university system to present my case, justify my academic performance, and explain why I am not nearly as accomplished as I would be if I were not navigating the very real barriers that come with having a severe sensory disability, and all the […]
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For All The World To See
What would you do if you could see? The question is posed by a stranger on the train, a shop assistant, colleague, potential employer, acquaintance, friend, or society in general, like a spider meticulously threading its web of power and liberty around a fly, innately illustrating yet again to me just who has the upper hand in this situation. I can almost see the expectation hanging in the air between us as I take a deep breath and gather my wits about me like a protective cloak, knowing this could get ugly. Of course, I am expected to reward such obtrusive attention with a walk along the moral high ground, with its gracious answers and honey sweet nectar. Never mind the encroachment, intimacy, invasion or intrusion on my very being, let alone the offensiveness or impossible nature of the question. The fact is, everyone does disability differently. There are as many means, ways and work-arounds for people with disability as there […]
Continue readingA Braille Menu Please
I think we live in a society that does not value diversity, difference or disability. If anything, our society sees anything other than sameness as a burden, bother or threat, unless it is temporarily convenient to view it as otherwise to meet an ableist objective. We don’t seem to realise that it is our cultural, community and communication values, as well as the systems and structures we continue to put in place that are the real problem. We continue to overlook the untapped potential and unused resources of our vast and creative population. But for what purpose? It is our intricacies that necessitate the drive for innovation, and it is our need to belong that brings us together and pulls humanity into the future. But what happens when we continue to create barriers to participation? Not only does it hold people with disability to ransom, and ensures they remain beholden to a society that is intent on punishing them for it, […]
Continue readingA Cane For Every Pair Of Shoes
If I were sighted, I think I would have been a fashion designer. I have always loved fashion, be it the various colours, textures, accessories or as a means of self-expression. Most of all, I have always loved how it makes me think, feel and respond. Family legend has it that the only way I would agree to potty train as a toddler was if I could have a pair of frilly knickers in exchange. My childhood is littered with fashion landmarks such as the beautiful, intricately patterned brown cowgirl boots I received for my eighth birthday, the wide elastic black belt with the neutral coloured peplyn top I got for my twelfth, and the frayed stretch denim shorty short shorts when I was eighteen. In adulthood, I expressed my fondness for fashion via those ridiculously high, strappy stilettos I bought when I was twenty-five. Everything from the stunning red, faux crocodile skin laptop bag I had in my thirties to […]
Continue readingBlue Sky
The sky shimmers with a life-affirming blue that penetrates my soul to the core. I cannot stop looking at it with a mix of disbelief and awe. Who put that there, I ask the expanse, fully expecting it to answer. However, it says nothing. It simply watches me. An entity of endless patience and relentless stillness, neither moved nor unmoved by my discovery of its presence. I wonder how long it’s been standing there. Hello, I want to shout at it. Hello up there, can you see me? Here I am, and there you are, isn’t this amazing? I want to jump up and touch it to make sure it’s real, but my jumping and reaching doesn’t seem to get me any closer to its big, blue belly. I climb up on the outdoor table in a bid to hold it in my hands, but the blue eludes me. How is it that I can see it but cannot drag it […]
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